Early this month I spent a week in Minnesota visiting family and seeing medical specialists. While there my wife and I contacted a couple who run a website devoted to Dravet’s Syndrome. They spontaneously invited us to come to their house in Afton, Minnesota to talk. They also encouraged us to stay for the town’s Fourth of July parade and then boat with them on the St. Croix (we did not have time to do the second). The day has stuck with me for several reasons.
Here is a normal husband and wife who happened to have a son with a serious illness. Rather than passively accept the advice of doctors and hope for the best, they began an national organization and sponsored a website, dravet.org, that provides detailed information about the disease. They put themselves in touch with the best doctors and researchers in the world. And they wrapped themselves in a community of other families with the same diagnosis. Some of the parents in their organization know more about the disease and current research than the average neurologist and they are willing to meet on call with any other family and share what they know. People and organizations like this belie the common statement that patients cannot be trusted to choose among providers and treatments. These parents are currently fighting the government for access to drugs that have been effective in other countries.
The parade was another experience. It was not very long and almost all the floats were from local businesses or organizations. Very hoaky. And yet, when you look deeper it is not too hard to see the real strength of America. On float after float you saw small businessmen who had risked their own capital to start a barbershop, dance studio, or restaurant and were now celebrating with the community that supported them. You saw people clapping and waving, usually not at the specific float or person, but at the idea of a life lived in freedom and comfort. These are not people who aspire to leadership or fame. If offered it, most would probably decline because it takes too much away from what is important: time with family, fishing, watching the ball game on TV. These are not people who need to be led by the nose. They are the strength of our country. The source of everything that makes us prosperous and great. They do not need a government that erodes their civil rights for their own protection, that spies on them, or that hides what it is doing in secrecy. They do not need to be protected from themselves.
The more I think about that day, the more convinced I am that Americans deserve much better from those who currently have money and power. They deserve parties that are willing to put forth sensible plans to deal with today’s problems. They need a President that will lead, not dictate. They need executives who refrain from using government to protect themselves from competition. They need business and political leaders with a strong sense of morality and the common decency to go away when they are caught in scandals. And most of all they need politicians and executives who realize that they are the beneficiaries, not the source, of the power that makes this country great.